Curse

Mistress Eyahl · Oct 25, 2005, 04:22 PM // 16:22

Great. Absolutely fcking perfect. I love the way our stupidn fcking government works. Stupid asylum seekers claiming god knows what benefits and people sitting on their fcking arses all day long claiming their benefit cos they have "bad backs" and stupid fcking girls getting pregnant and claiming benefits cos they now can't go to college/get a degree/get a fcking job.

But I get fcking disallowed. They say I'm not eligible for the mobility part of Disability Living Allowance because there is no evidence of swelling in the joints, pain in the limbs or experiencing severe discomfort when I walk.

HELLO!?!?!?! Have they ever HEARD of fcking Hypermobility and Fibromyalgia?! I've had two KNEE operations to SCRAPE the bone from the back of my knee cap because it causes too much pain and inflammation.
I have artheritis in my hips and imflammatory artheritis in my knees and elbows. If I sit at this computer using the mouse for more than two hours, the temperature of my elbow goes up about 5 fcking degrees because of the pain and imflammation INSIDE it.
I mean, GOD, what else do they need?! Disallowed the first time so I send off letters from my sister and my best friend explaining how the pain I experience affects my life. I send off a letter from my doctor VERIFYING the fact I actually have these conditions. I mean, the stupid wanker making the deceision, does he ACTUALLY know what HMS and FMS are? Cos just knowing what they are and what they do and the symptoms explains why I'm bothering to actually CLAIM this stupid benefit.

And this benefit's important. I can claim this and recieve money while still having a job. So it means I can come OFF incapacity benefit and income support and actually try and work. I'll only be able to work a few hours a day which will never support me, but this benefit will help me actually have a life.
But no, everyone else gets money thrown at them from the government while I'm here trying to prove my conditions to someone AGAIN.

You know, (i apologise for this) it's easy having something like Cancer or a broken leg because everyone knows what it is and gives you sympathy and support. All they see when they see me is someone who sits at home and leads a normal life. Yeah RIGHT. TRY it.
The emotional side alone from having conditions that no-one knows anything about and are invisable to the eye are enough to send anyone over the egde. Add to that pain from doing simple shit like cutting your food or typing this STUPID fcking message and you're in a world of hell.

It takes so much fkcing strength to get through it all but being told there's nothing ever wrong with me is just too much to take...

-----

I don't care if I get flamed for posting my "highly personal" shit. I know what's wrong and I don't have to prove myself to anyone. These stupid benefits were designed to help people who can't help themselves through lack of choice and options.

Choice. I forget the meaning of that word..

Eugaet · Oct 25, 2005, 04:39 PM // 16:39

Hey, you want me to take care of this wanker for you? Me and my troop of ninjas could make him, um, "mysteriously disappear"

and replace him with a puppet to do your bidding. For a fee, of course. Ninjas don't come cheap.

Seriously, though, sorry you're having problems claiming benefits. I'll pray for said wanker to grow a brain.

Old Dood · Oct 25, 2005, 04:42 PM // 16:42

I hear ya Mistress! I will admit I do not anything about British Medical. I am still figuring out ours over here on this side of tha pond.

Is it similar to Canada's?

Have you got a second/third opinion to back you up on these forms? I am sure you are no different then here in relation to you only being a number not a person on these type forms.

I too have back/neck pain. I could go on disability if I pushed it. I pay for a policy on my own for that purpose. I am sure I would have to dance through hoops in order to receive anything. So my doctor has just gave me a form to go to a Physical Therapist to try to alleviate some of this pain. Not to meantion I have arthritis in my hands, arms, knees. I know when the weather is about to change. There are days that I roll out of bed and creak all the way to the bathroom.

Hang in there. Write some snail mail. Go down to the office where they make these decisions and press the flesh. You might have to just pour it on and NOT GO AWAY to get anything done.

EDIT: Remember to be your Cute Loving Self when you contact these people!

Xue Yi Liang · Oct 25, 2005, 04:47 PM // 16:47

That's the problem with the NHS. I worked in the UK as a medical student for a year. The system is really screwed up for people with real problems.

Chronic pain is a problem that needs to be taken more seriously. Fibromyalgia, unfortunately, is something not always appreciated - it can be a living hell for those who have it badly - especially when having to face the burden of proof to a smug skeptical bureaucracy. I'm sorry to hear what you're going through.

LeftAlone- · Oct 25, 2005, 05:14 PM // 17:14

Ouch :/
Meh.. that sucks cr4p.. *sits down by Eyahl and gives her a healing therapy*

I was just talking yesterday with a guy from Finland that lives in UK.. Warned me to get all my medical stuff done and in order before I move to UK.. :/

Really sorry you're going through that stuff

Sir Skullcrasher · Oct 25, 2005, 05:20 PM // 17:20

yeah.. in US its worst too. We don't have any benefits from Medicare or any health coverage. Other than paying those idiot doctors or organization tons of cash so that they can buy houses, nice cars, and other good things. We get the royal screw job here too.. so i feel your pain!

Aracos79 · Oct 25, 2005, 06:09 PM // 18:09

And people think that socialized medicine is a good thing? Do you really want to trust the government with your health? I mean... they handle other things SO well right?

Sorry to hear about your situation. I hope you can find some remedy soon.

Doooom · Oct 25, 2005, 06:22 PM // 18:22

I feel for Eyahl completely, but I disagree with Aracos completely. The US medical system is completely run by corporations, who are simply more shameless with their self-interest than governments. I really think we'd be better off with socialized medicine. It has its faults, too, I understand, but I still think it's better than the US model.

Aracos79 · Oct 25, 2005, 06:52 PM // 18:52

Umm... two things. First, I never said anything about the US system. Yes the drug companies (and the FDA that empowers them) are running the show. If you'll notice, I did not make any comment to the contrary. It is not a true free market.

Secondly, you distrust corporations but you would trust GOVERNMENTS? There is only one thing less trustworthy than a corporation, and that's a government. A corporation is predictable. It wants to make a profit, and that motivates their actions. Governments are infinately more corruptable and less predictable in their actions. Your trust in government as a group is very poorly placed... especially when your health is what is at issue.

Xue Yi Liang · Oct 25, 2005, 07:26 PM // 19:26

Quote:

Originally Posted by sir skulkcrasher

yeah.. in US its worst too. We don't have any benefits from Medicare or any health coverage. Other than paying those idiot doctors or organization tons of cash so that they can buy houses, nice cars, and other good things. We get the royal screw job here too.. so i feel your pain!

Believe it or not, it's not us doctors that are making all the money - that's a stereotype that irritates me to no end. I'm not going to get into all the shit we put up with from people (sry you caught me on a bad day) all the time - but blame the Pharmaceutical Executives, Malpractice Lawyers and Govt. Bureaucracy before you blame the physicians. It's easy to blame us because we're the ones patients actually see - nobody blames the CEOs and politicians. Physicians aren't the truly wealthy ones - we actually get payed very little for the crap we put up with on a daily basis ... but I won't get into that right now.

Aniewiel · Oct 25, 2005, 07:29 PM // 19:29

MODERATOR NOTE: Do not turn this into a political discussion of the merits/demerits of socialized vs. privatized medicine. Keep it a sympathetic discussion of Mistress's situation. If it continues in the vein that it is, it will be closed.

Politics and religion do NOT belong on this forum for the high flame potential. Keep that in mind.

Mistress Eyahl · Oct 25, 2005, 07:49 PM // 19:49

Yeah, can we stfu about the US's way of handeling their medical issues. We're not talking about that. We're talking about the british way of awarding and not awarding benefits.

Doooom · Oct 25, 2005, 07:59 PM // 19:59

I didn't mean to steer the discussion into a political debate. I obviously misunderstood Aracos' comment on the situation, and honestly did not mean to direct attention away from your situation. I feel for you terribly and am very sad to hear that the British government is handling your case so poorly. I have a dear friend with fibromyalgia who suffers the same situations here in the States.

SOT · Oct 25, 2005, 08:11 PM // 20:11

I have family in Scotland. One relative. That person has the literal same medical problem, and the same hoops to hop through.

I cannot say with authority on your side of the world what your options are, or how it will turn out, but I do know that it is hard to deal with, i sent you a pm about it.

Hang in there.

Aracos79 · Oct 25, 2005, 08:23 PM // 20:23

My apologies as well. I'm a political junkie and sometimes I can't just let it be.

My thoughts and prayers are with you Eyahl.